Living with multiple sclerosis (MS) can be an unpredictable journey, one that Sharon knows all too well. At 55, Sharon was diagnosed with secondary progressive multiple sclerosis (SPMS)—her first-ever MS diagnosis—at a time when she was working full-time in a demanding hospital admin role, performing as an award-winning traditional country music artist, and volunteering actively, especially with the elderly at her local RSL. She was living life flat out, with no time to take a break.
The diagnosis was a turning point. Sharon experienced a whirlwind of emotions— shock, relief, confusion, guilt, and grief.
“When I was told MS, I was a blank wall of shock… relief it wasn’t worse, confusion as my many doctor friends were so upset for me, guilt to ‘do this’ to my husband and family, disappointment at missing wonderful music plans.”
In the time since, Sharon has wrestled with escalating symptoms—from foot drop and fatigue to migraines, memory issues, and sensory challenges. The MS diagnosis answered a mystery of symptoms that she’d brushed off as stress or age.
Sharon’s journey has been greatly aided by the support she received from MS Queensland and the National Disability Insurance Scheme (NDIS).
Through her neurologist’s nurse and MS Queensland, Sharon successfully applied for NDIS, allowing her to receive essential mobility aids like a walker and an electric wheelchair, which enabled her to maintain independence.
“Daily life is now with wonderful support workers who help at home and accompany me to appointments while my husband is away at work.”
With help from her MS Queensland support coordinator, Sharon has access to a structured care network that includes physiotherapy, occupational therapy, psychology, and more.
“My support coordinator has been crucial in navigating my care, allowing me to focus on well-being rather than logistics.”
Over time, Sharon has also learned to recognize and manage anxiety, which she describes as “one part elevated adrenaline = 10 parts MS impact.” Techniques like mindfulness, self-kindness, and connecting with online MS support communities have become essential parts of her daily life.
For Sharon, participating in events like MS Super Splash goes beyond fundraising; it’s a chance to connect with others who understand her journey.
“MS Queensland has been a lifeline for me. Through their help, I’ve been able to keep learning, accepting, and adjusting to life with a positive, can-do attitude.”
Her advice to others facing a similar path is simple yet profound:
“Breathe, you will be okay. This journey can be life-changing and scary, so reach out for help. Let yourself feel what you need to, find options, and educate yourself. Life isn’t over—it’s just different.”
